Our chemo floor does not have a big bell to ring at the end of chemo as many American ones do but I am not sure that I really wanted that anyway. I was happy to have the sessions end but I am not quite there yet with feeling it is the end. Many patients are back with recurrences and in the back of my mind I know there is that chance for me too. I am not going to dwell on that but it is a reality. My nurse, Jen did give me a big hug and the other patients in my room wished me well.
Before I got my Taxol each time I got 20 mg of Dexamethosone and 50 mg of Benadryl IV. These are to ward off any allergic reactions mainly from the solvents used to render the Taxol infusible. So I turn in a bit of a zombie for awhile with dry mouth and slurred speech. Oh well, a small price to pay for no allergies and the benefit is lots of steroid energy for a couple of days following, like today!
Negatives:
- loss of the hair on my head~~buzz cut video way back in October.
- hair loss everywhere else I have hair~~most annoying has been nose hair as my nose runs non stop outside especially when walking, hiking or snowshoeing. One day I was leaning over to grab some toilet paper in a public bathroom just prior to a hike and snot suddenly poured out so fast it left a puddle on the floor. I read and laughed out loud when a fellow BC writer described doing the same on a boardroom table!
- watery eyes due to dryness caused by chemo and drugs taken along with chemo
- dry nose with bleeding especially at night if I end up nose breathing~~no nose hair does not help.
- dry skin and more age spots (hope that is just my imagination!)
- mouth sores~~compromised immune system
- diarrhoea, constipation
- nausea
- loss of taste buds
- weight and muscle loss
- fatigue
- unmentionable infections
- anaemia, neutropenia
- headache and fevers
- muscle pain
- neuropathy (this is the latest for me from taxol)
- chemo brain~~this is a very real consequence but seems that it is reversible.
- fear, anxiety, anger, frustration
Positives:
- Chances for reflection on what is important (and not so important).
- Understanding what I am grateful for.
- Having my family support me and make me laugh (and cry sometimes).
- Renewal of friendships.
- Knowledge that my chance of survival is greatly increased.
- Meeting other cancer patients and hearing their stories.
- Knowing what an amazing cancer center we have in Vancouver.
BC Cancer Agency chemo room~~last infusion!
Celebratory glass of wine with Dick last night!
Love your smile. I had my first chemo yesterday and I too am angry about all the time that has been used up with diagnosis and surgery over the last 3 months. I'm still looking at 3-5 more chemo over next 4 months and then 6-1/2 weeks of radiation after that. I opted to begin reconstruction at time of surgery, but that is on hold now until after radiation. I am headed to my studio now for the first time in months. I think that will help me pass the time and contribute to healing process.
ReplyDeleteMary Ann, I did not read your comment until just now and will write to you via email. Too many of us here. I talked to Linda Lusby in the fall about her BC and was just at Lorne Stefan's last week~~his wife died in Dhahran of metasticized BC in 2006 and I was with her. I spent years going to chemo with Linda and wow did it all get brought home when I started in with this whole process. :) Marian PS I see you work on FB and wow you are so talented!
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